Georgia 
College
Miracle

Julia Simpkins - Executive DirectorJac

director.gcmiracle@gmail.com

(404) 510-0852


Miracle Georgia College

Campus Box 100

231 W. Hancock St. 

Milledgeville, GA 31061

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© 2016 Georgia College Miracle Network Dance Marathon

Meet our kids

Marriage Preparation

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Women's Ministry

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Volunteer Groups

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Kid's Ministry

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College Ministry

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Pastoral Support

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Our Miracle Kids are the reason we go the extra mile, the 110%, above and beyond. They are the kids behind "For the Kids" and we wouldn't be able to do what we do without them. All of our Miracle Kids have directly benefited from our Children's Hospital in Macon, Ga.

 

If you know anyone who has been treated at Children's Hospital, Navicent Health and might like to be a part of GC Miracle as one of our Miracle Kids, please contact our Director of Family Relations, Shannon Healy, at gcmiraclefamily@gmail.com

OUR KIDS

Macie Johnson

Her story:

Diagnosis: Ventricular Septal Defect with Anomalous Muscle Bundle

 

Diagnosed at One day old with VSD, which means that she had 3 holes in the muscle of her heart. Hospitalized multiple times as a baby to treat secondary issues from her VSD such as profuse vomiting and failure to thrive. Tube fed for a few months and was healthy by the time she turned a year old. However, she was diagnosed with the anomalous muscle bundle, a complication of VSD, a year ago and is once again receiving treatment and may face open heart surgery in the future.

Wyatt Turner

His story:

Diagnosis: Bronchiectasis, GERD, Swyer-James Syndrome, cavernous hemangeoma liver (benign tumor), dysphagia, asthma, delayed bone growth

 

Basically, Wyatt has several lung diseases that give him symptoms similar to Cystic Fibrosis. Because of this, he is small for his age and has a chronic cough that sometimes slows him down. He has had large portions of his left lung removed.

 

Current Health Status: Bronchiectasis has spread into his right lung, which only used to be in his left lung.

John Pate Leverette

His story:

Diagnosis: 26 week premie

Born at 26 weeks and spent 100 days in the NNICU on life support. He was 2lbs 7oz at birth and 14 inches long and dropped to 1lb 15oz at his lowest weight. John Pate had a brain bleed, retinopathy of the eyes, spinal meningitis, was on oxygen 51 days, and had numerous blood transfusions, and two surgeries. We were told he would not walk, talk, or see, and that he might be mentally retarded. He is playing soccer and has been tested for the gifted program!

Avery Lee

Avery was experiencing severe diarrhea with blood and excruciating stomach cramps. Upon taking her to the doctor and completing stool cultures she was diagnosed with CDiff. C-Diff is an extremely contagious and deadly (over 15,000 people a year are documented as dying from C-Diff but there are more that are classified as stroke, dehydration, etc.). We started with a treatment plan of Flagyl. We did three rounds of therapy with Flagyl and each round failed. She was admitted into the hospital for IV antibiotics and to begin Oral Vancomycin. She responded well to the oral Vancomycin and was released after 4 days. She was to remain on the Oral Vancomycin for 6 weeks with great hopes that it would be the end of the bacteria. At the end of the treatment, the C-Difficile returned. She was readmitted to the hospital. She began treatment of IV Flagyl and oral Vancomycin. Again, she responded well; she had a colonoscopy and it was determined there was not an underlying issue that kept her from fighting off the bacteria. She was released and it was decided that she would have a therapy of taper dosing for Oral Vancomycin. During the next 6 weeks, Avery developed reactive arthritis, night terrors, and had to be taken out of school, church and social situations. After 6 weeks, the C-Diff returned. While trying to find a hospital to perform a Fecal Microbiota transplant (the closest at the time was Minnesota), she began an experimental therapy that was also unsuccessful. After many prayers, God sent us to Dr. Jeff Lewis at CHOA. Dr. Lewis had been working for 18 months for approval to begin pediatric fecal transplants. At our very first appointment, he told us that he would receive the approval the next weekend he could perform the transplant. The next week we took Avery in and she was the first pediatric patient in the Southeast to undergo a Fecal Microbiota Transplant.

Hunter Bayne

Diagnosis: pneumothorax at birth

 

Hunter was born in distress after a long and intense labor that was very hard on him. Immediately after birth, he suffered a pneumothorax (collapsed lung) and was taken immediately to the NICU for a chest tube, oxygen support, and a feeding tube. With in one week's time, Hunter went from being a "notouch" baby to weaning off the feeding tube and heading home.

Elwin Starling

Diagnosis: Esophageal atresia and tracheoesophageal fistula, Autism Spectrum Disorder

 

Elwin was born with a defect to his esophagus and windpipe (called EA/TEF). He spent 75 days in the NNICU and had 7 surgical procedures during that time to repair the esophagus and place a feeding tube to allow him to eat and grow until he could learn to eat by mouth. After leaving the hospital, Elwin continued with 3 years of physical, occupational, and feeding therapy. At 3.5 years old, he was diagnosed with Autism Spectrum Disorder (level 1/Asperger's). He has been in behavioral therapy since that time. He also has a hyperlexia diagnosis, which means he has a very special reading super power. :)

Jack Weston Trussell

Diagnosis: Was born prematurely at 34 week and returned to the Children's Hospital. At 6 weeks old returned with RSV.

 

My lungs were not fully developed, and so I spent the first seven days of my life in the Neonatal Intensive Care Unit at The Medical Center, Navicent Health. Soon after I was allowed to go home, but thanks to my sister Ava, I developed Respiratory Syncytial Virus (RSV). At six weeks old, I returned to the Children’s Hospital, Navicent Health. Where I was taken to the Pediatric Intensive Care Unit, where I received the highest level of oxygen and then was placed on a ventilator. I remained at Children’s Hospital for 14 days before returning home. A short time later, however, my mom had the feeling that something was not right and asked her friend, Mrs. Alicia Jackson, a nurse at Children’s Hospital, to come by to see check on me. She recognized that I was in respiratory distress, and we immediately returned to Children’s Hospital. Within 24 hours I underwent a bronchoscopy to dilate (stretch) my airway to help me to be able to breathe better. However, it was back to the ventilator I went for another week.

Abe Gainous

Diagnosis: Pre-B Acute Lymphoblastic Leukemia

 

Abe was diagnosed in May of 2012. This leukemia is cancer of the white blood cells. He has been in remission since August 13, 2012. He finished maintenance chemotherapy in August of 2015.

Brody Jackson

Diagnosis: Spastic Cerebral Palsy, Cortical Seizures, Partial Blindness

 

Brody is 6 years old and was diagnosed with spastic cerebral palsy, cortical seizures, partial blindness, and bowel issues at birth (he was also a preemie). He is still non-mobile, cannot regulate his body temperature, and uses a feeding tube. Despite his circumstances, he is a very happy little boy! This past year he has been through various surgeries and doctors appointments to keep up with his everchanging health.

Grason Anderson

Diagnosis: immune deficiency

 

Grason was diagnosed with an immune deficiency at a young age that caused his body to not create the white blood cells and antibodies needed to fight infection. He was hospitalized 13 times during the first 14 months of his life. He continues to be treated at The Children’s Hospital Navicent Health to this day where he receives intravenous immunoglobin every 21 days to build new antibodies. With the treatments he receives at the Children’s Hospital, Grason leads the normal, active life of a 10 year old. Keep being awesome, Grason!

Joshua Kollas

Diagnosis: Steven Johnsons Syndrome

 

Joshua is 7 years old and was diagnosed with Steven Johnsons Syndrome. This is an autoimmune disease that results in blisters covering the inside and outside of his body. He was treated at Children’s Healthcare of Atlanta. He now experiences some residual effects (mainly teeth and eye issues) but other than that, he is completely healthy and completely adorable!

Ava Smith

Ava is one of our brand new Miracle kids this year! We cannot wait for all the adventures to come with her joining our miracle Family! Ava Jade was born at the Medical Center in Macon, GA. She had a spontaneous brain bleed in utero which led to her being born with a condition called Hydrocephalus. Her brain was building up with fluid, because it could not drain like it should. She was transferred to Scottish Rite in Atlanta and had surgery when she was 6 days old. She had a "shunt" inserted into her brain that connects to her abdomen by a tube. It drains the excess brain fluid from her brain to relieve the pressure, into her abdominal cavity. She was transferred back to the Navicent Children's Hospital for her recovery and we stayed there for almost 2 weeks. Her father and I never left her side and spent the night in the room with her.

 

Six months later, Ava Jade is the happiest baby I have ever seen. She has had one more surgery to fix the shunt, but is continuing to surprise us with her strength everyday. We are so thankful to God for these Children's Hospitals that have blessed Ava and so many other kids. Now is 8 months old and happier than ever!

Kyler

In l October 2017,  Kyler,starting having low-grade fevers in the evening when he came home from daycare. A few weeks later he began having leg pains during the night that worsened over a few days time. One particular night, his leg pains were so severe he screamed all night long and refused to walk the next day. This prompted us to take him to his pediatrician. After labs and monitoring his fever, he was referred to a specialist for possible juvenile rheumatoid arthritis and subsequently an Oncologist. Kyler was diagnosed with Acute Lymphoblastic Leukemia on 11/21/17 and began treatment the day after Thanksgiving. 

 

Treatment for ALL last approximately 3 1/2 years and consists of chemotherapy—through a port, orally, and in the spine, steroids, blood transfusions, hospitalizations and more. Kyler goes to physical and speech therapy too. 

 

On Kyler's good days, he enjoys sports, playing outside in the dirt with construction vehicles, building Lego's, searching for bugs, pretending to be super heroes, and playing with his MONSTER TRUCKS!

Landon Holland

Diagnosis: Autoimmune Neutropenia Autoimmune Neutropenia is where the body identifies the neutrophils as enemies and makes antibody to destroy them. Current health status: Still receiving treatment for it

Caleb Williams

Diagnosis: Osteomyelitis & MRSA

 

My mom took me to the ER & the doctor just said it was an ear infection & sent me home with antibiotics but when I got home my mom kept thinking something else was going on with me & my temp went up to 105 she took me back to the same ER & they started running test & trying to get my temp down. They said I had sepsis also. Once I got to the 2nd hospital they said it was osteomyelitis & went in to get the infection out. Once they did that it had already started spreading & then on top of that they also said I had MRSA. I was then taken to Macon Children’s Hospital so they could care for me. I had 2 more surgeries to get all the infection out.

Hope Moore

Diagnosis: 26 wk surviving twin preemie

 

Hope would not be here if it wasn't for the attentiveness of the staff and the care she received in the NICU. Her twin brother suffered a brain bleed grade 4 both sides (which is the worst) and coded after 2 days in nursery. Hope didn't show any signs but she was examined by the medical staff to discover she had a bleed as well (4 on the left and 3 on the right) and preventative treatment was started. She remained in hospital another 3 mos on oxygen, had a shunt placed in Atlanta and discharged with a feeding tube.

 

Hope continues therapy weekly. Now walking, talking, and eating on her own